Cystic fibrosis dating someone with cystic fibrosis
"I attend a specialist chest clinic once every 2-3 months (though this was monthly during my pregnancy) where my treatment and lung function is reviewed, I see a doctor, a physiotherapist, a dietitian, and a nursing team.My partner is a carrier of the recessive gene so there is a 50% chance of passing on the illness in its typical form to any child we may have.Tablets with everything I eat and trying to fit in a job on top of everything else is pretty tough going."Lots of coughing, phlegm, and poo if I'm entirely honest. Tablets, calories, nebulisers, exercise, calories, work, tablets, nebulisers, calories.Sleep." – Michael Winehouse "The importance of exercise is not realised.People tend to lose their words when I explain I have had a double lung transplant at 25.It can be embarrassing when you want to make a good impression and they google CF and it comes up with words like 'sticky', 'sputum', 'poo'."One doctor examined me one day, agreed with the suspicions of my parents and quickly arranged a sweat test, which proved them all right and CF was the result." – Michael Winehouse"I have had CF my whole life.
I travel by public transport a lot and the amount of people who give me repulsive looks while I cough, or not-so-covertly lift their shirts to cover their mouths, is always noticeable to me." – Martha Lane "There is no difference in my outwardly facing appearance on the days I feel at my worst. " – Michael Winehouse"I am extremely good at hiding my condition from new people and find it difficult to explain initially.
"Often, people with CF struggle to put on weight because they have trouble digesting food – particularly fatty foods.
The condition can also lead to wider complications such as CF-related diabetes and organ damage." – Dr Keith Brownlee, director of impact at the Cystic Fibrosis Trust"It isn't just a bad cough.
More than 2.5 million people in the UK carry the faulty gene, around 1 in 25 of the population, and there is currently no cure." – Dr Keith Brownlee "Virtually all men with cystic fibrosis are infertile.
Women with cystic fibrosis are usually able to have children, but it can be more risky, especially if they are underweight." – Dr Keith Brownlee As well as taking medication daily, some people with cystic fibrosis see a physiotherapist to help with the mucus buildup.